Chronic Lung Disease, Helping with Treatment: for Caregivers

Visits with the doctor and certain treatments are essential to maintaining overall health. Encourage your loved one to take the lead in his or her care. Then be there to provide support as needed. Work together with the healthcare team to make sure all appointments are kept and treatment instructions are followed.

The Healthcare Team

Learn the names of your medications and how to use them.

• A pulmonologist offers specialized knowledge about lung problems. He or she may work with a primary care doctor to guide the treatment plan.

• A respiratory therapist evaluates breathing skills and teaches breathing techniques to improve symptoms.

• A physical therapist teaches energy-saving techniques and oversees exercise and physical activity.

• Nurses assist with all types of care, and can help answer questions and implement treatment plans.

• A social worker or case manager helps with paperwork, answers questions about healthcare issues, and provides referrals to needed services.

• A pharmacist fills prescriptions and provides information about medications and how to take them safely.

• A representative from a home healthcare company helps with equipment needed for treatment, such as oxygen. He or she can set up and demonstrate how to use the equipment.

Visits to the Doctor

Attend visits to the doctor as a team. To make the most of these visits, work together to:

• Keep a file for medical records. Include lists of medications and allergies, and medical history. Bring the file with you to the doctor’s office.

• Keep track of changes in symptoms, diet, and physical activity.

• Prepare a list of questions and concerns. Make sure these are addressed before leaving the doctor’s office.

• Bring a notepad to take down instructions from the doctor.

Common Treatments

As a caregiver, try to understand treatments so you can help support good care habits. Here are some common treatments:

• Medications help manage symptoms of chronic lung disease. Learn the names of any medications prescribed, how they work, and when to take them. Some medications require a special device, such as an inhaler or nebulizer. Know how to use these devices.

• Oxygen therapy helps improve breathing. If oxygen is prescribed, make sure all safety guidelines are followed.

• Pulmonary rehabilitation (rehab) trains patients on topics such as exercise, emotional support, and managing symptoms. Team members usually include doctors, nurses, respiratory therapists, and physical therapists. If possible, attend sessions with your loved one.